Nunatsiaq Online
NEWS: Nunavut September 12, 2017 - 8:00 am

Global AIDS advocate steps back to fight TB at home, in Nunavut

Stephen Lewis says Canada spends millions fighting TB in other countries

BETH BROWN
Stephen Lewis with Paul Quassa, standing, and Nunavut Health Minister George Hickes during a country feast in Igloolik last week. Lewis, an international health advocate, visited the Baffin community as part of a fact-finding mission for an upcoming report on TB in Nunavut, to be released through his NGO Aids-Free World. (PHOTOS BY RON WASSINK)
Stephen Lewis with Paul Quassa, standing, and Nunavut Health Minister George Hickes during a country feast in Igloolik last week. Lewis, an international health advocate, visited the Baffin community as part of a fact-finding mission for an upcoming report on TB in Nunavut, to be released through his NGO Aids-Free World. (PHOTOS BY RON WASSINK)
Stephen Lewis speaks with Aluki Kotierk, president of Nunavut Tunngavik Inc.
Stephen Lewis speaks with Aluki Kotierk, president of Nunavut Tunngavik Inc.

A world-renowned Canadian health advocate says Ottawa needs to apologize to Inuit for its past treatment of tuberculosis sufferers, and to start putting money into fighting the disease right now.

“There’s no amount of money that can compensate for the historical atrocities. But there is an amount of money that can compensate for the injustice today,” said Stephen Lewis, co-director of the non-governmental organization, AIDS-Free World, after a four-day fact finding mission on TB in Nunavut.

Lewis, once the deputy executive director of UNICEF and Canada’s ambassador to the United Nations, spent two days in Iqaluit last week meeting with people from the Nunavut Department of Health, Nunavut Tunngavik Inc., community health organizations.

He visited Igloolik for two days, meeting with the hamlet and health centre staff, school age children, and elders. He also toured a social housing unit and attended a community feast.

His visit will lead to a report on TB in Nunavut, where he said he hopes to return in 2018.

While Lewis has worked to advocate against TB internationally, this is the first time he has focused on the disease in Canada.

Internationally, TB kills more people than AIDS and malaria combined, Lewis said, in places such as India, China, Russia, Indonesia and South Africa.

But in Canada, he called Nunavut “the epicenter” for TB.

While visiting Nunavut, “we were exposed to issues for which we were entirely unprepared,” Lewis said, during a Sept. 9 news conference at Iqaluit’s Frobisher Inn.

“There are 14 out of the 25 disparate communities wrestling with active and latent cases, many of them children,” he said.

In Igloolik alone there are 11 active cases and many more latent cases in the community of about 2,000 people. With a small territorial population of about 35,000, these numbers “loom very large,” he said. 

And that’s just what is happening right now.

Lewis met with elders in both Iqaluit and Igloolik, who shared their own stories and stories of loved ones who were sent south in the 1950s and 1960s. Many people never saw their family members again, and never found out where they were buried.

Lewis said every elder he spoke with wept when they related the experience of being taken away on a hospital ship and held in a southern sanatorium with no way of communicating with any of the staff.

He said the memory of those experiences creates, “a level of stigma that can never be eradicated,” adding that the trauma calls for an apology, training to decrease TB in the territory, and resources for families to find their lost loved ones, including travel to their gravesites.

“Nothing less will do,” Lewis said.

With the current Liberal government nearing its two-year mark in its mandate to mend ties with Indigenous Canadians, “I have yet to see enough evidence of this partnership in reconciliation,” said Lewis, a past leader of the Ontario New Democratic Party.

While the feds have a new Department of Indigenous Services and a “strong minister” in Jane Philpott, Lewis said next steps by the government will be a test of their commitment.

Lewis, who spends a lot of his time seeking out international development assistance, estimated that about $150 million Canadian dollars are currently being spent to fight TB in other countries. 

“Why can’t you do that in Nunavut, with Canadian citizens, in an Indigenous community?” he asked rhetorically. “I can not imagine why, in a strong democratic western society, you cannot summon the dollars to do the job,” Lewis said. 

The root causes of TB can be found within Nunavut’s poor “social determinants of health,” he said. That term refers to the things that make a society healthy, or not, such as poverty, food security and housing.

After visiting a public housing unit in Igloolik, Lewis said, “The mold was everywhere, [there were] holes in the walls, water not working, mattress on the floor…  You can’t have that kind of thing and expect tuberculosis to be under control.”

He did say that a shortage of nurses in the territory was problematic, along with a shortage of Inuit language services.

TB treatment requires taking a pill daily for nine months. Ensuring follow-through treatment with patients is almost impossible, in light of high staff turnover rates in most Nunavut community health centres.

Dr. Gonzalo Alvarez, a TB researcher from the Ottawa Hospital who has been working to reduce the disease in Nunavut for about 10 years, said he has never seen anyone with Lewis’ level of international influence come to speak on TB in the territory. 

“When he speaks, people listen. And it’s incredible that in such a short time he was able to pick up what Inuit are telling him, by listening,” Alvarez said. 

In Canada, both Indigenous and immigrant populations experience high levels of TB. While there are higher than average rates in First Nations communities, rates of TB among Inuit are much higher, Alvarez said.

  Stephen Lewis Statement on TB in Nunavut, Sept. 9, 2017 by NunatsiaqNews on Scribd

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(5) Comments:

#1. Posted by earth3rd on September 12, 2017

To the government of Canada. Please listen to this man and implement the things he has suggested. The time is now. This would make a huge advancement to reconciliation.

#2. Posted by Aqpik on September 12, 2017

Not only was it during the TB outbreak. The fed gov’t treated us like numbers. When I was 5 yrs old I was sent to a hospital to Churchill, MB alone, no escort. At the age of 5 how would I have known what was happening and why I was sent out for treatment. Then at 13 yrs old I was on a medivac again by myself to Winnipeg. I was in the hospital for 7 days, had surgery. Then I went to the boarding home for another 7 days. 14 days in a city by myself, no escort. I cannot image sending my child alone at the age of 5 or 13 to go a hospital. How can the doctors/nurses give me treatment without a parent’s consent back then?

#3. Posted by Douglas Keith on September 12, 2017

I can not believe what I have just read about Nunavut. Everyone is wondering about the high suicide rate of Young Inuit people. I thought it was because of the harsh climate, (it is really cold there, the flying insects in summer for a few weeks are merciless and there is not much to do for young people who may not be interested in their culture before tv, iphones and computers).

Living in such a desperate housing and food situation is horrific. Being part of a recent scoop as described in this report is intolerable. How is it possible to be treated like this in Canada?

I am a retired bush pilot, knew Rankin,Chesterfield and Baker. Spent the summer in love with the Keewatin and it’s people. I knew nothing of what I have just read. Thank the frozen gods for the Nunatsiaq News. What can us ‘other’ Canadians do to help our northern brothers and sisters?

#4. Posted by Dean on September 12, 2017

I’m a Public Health/TB nurse here in Arviat. I’m so happy someone of Stephen Lewis’ stature is shedding some light on the plight of the people of Nunavut.

I’ve only been here for a month but the social disparity is so palpable. The region is being neglected.

TB, especially here in Arviat, needs our attention Southerners. We need to put pressure on the Federal Government to help the Govenrnt of Nunavut. This is a national crisis and should be treated as so.

#5. Posted by Inuk on September 12, 2017

#3 first the north should be invested with infrastructure and more training and education. Build the capacity so that our people can work to improve our situation. Without proper assistance, building the badly needed infrastructure instead of ignoring the north and looking away.
Continuing to give just enough money to operate but not really building infrastructure just prolonging this terrible situation in the north.

When you look at places in Scandinavia’s north and even Russia’s north, they have much more infrastructure than that of Canada.

Scandinavia is a great example of how to build up the north, not the band aid solutions that Canada has done for so long.

More professionals need to speak out as will, thank you Mr. Lewis for bringing this to light for the rest of Canada.

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